Hi Bumbleknee, I only occasionally read the bulletin board these days. I'm still battling arthrofibrosis but my situation is compounded by the fact that I have an underlying inflammatory disease called ankylosing spondylitis. I kept a lengthy journal on my arthrofibrosis experience, including commen...

Jess, Don't worry too much about the icd-9 code. From what I recall, there is no code specifically for arthrofibrosis/ scar tissue/ adhesions. In my case, doctors have used the same code, 719.26- villinod synovitis, as well as 718.56-- ankylosis of lower leg joint (Ankylosis means stiffness) and 727...

Hello Carrie, About my comment on your PT: My impression from reading your posts is that he/she has not given you adequate explanation for the tightness and catching. Yes, catching, clunking, and the like can be the result of weak muscles, especially the quads. The quads are attached to the upper pa...

Hello Carrie Lynn, I have a bit of history with AF and am also dealing with a disease called ankylosing spondylitis. I won't go into any details about AS other than to say that it's a systemic disease that can cause a lot of pain and severe fatigue. I read the boards from time to time, unfortunately...

Hello Trinity, Yes, a person can have patella baja and not have CRPS/ RSD. I'm one of those persons and there are several more who regularly post on this board. You may recall from Dr. Noyes' AF course and other information that patella infera is the result of shrinking of the patellar tendon, often...

Hello Suz, I hope all went well with your surgery. You'll find lots of info on excess scar tissue-- a condition called arthrofibrosis-- by reading the posts in this section and taking a look over on the Information Hub. You can find the information hub link in the upper right-hand corner of this pag...

Hello LisaB 0-60 on the CPM was probably appropriate given the surgery you had. The primary purpose of the CPM is to passively move the knee to help normalize the joint fluids which reduces swelling and inflammation. You might recall from Dr. Noyes' AF course that excessive prolonged swelling and in...

Hello other Lisa, Post-op scar tissue is not unusual following OATS (or other cartilage restoration) procedures. It's sounds like your OS is right on target to resolve your loss of motion issues as soon as possible. As I suggested to above, go the the information hub and read Dr. Noyes' arthrofibros...

Hello Lisa, I agree with Pam that it is critical that your OS does the arthrscopy, scope, lysis of adhesions (LOA), BEFORe doing the MUA. Please do not go into surgery without clarifying with your doctor that the LOA will be done first and that the MUA will be done gently. I'm one of the many people...

Hi Linda, I'm going to do some cut-and-paste to respond to your post. >>>>> My RSD was suspected by my Ortho after numerous attempts to get my knee to move failed and my pain level was very high. He referred me to my Physiotherepist (pain management dr) who did a complete exam and suggested it was R...

Hello Linda, I have both arthrofibrosis and ankylosing spondylitis, and early on in my knee arthrofibrosis battle I was tested for RSD/ CRPS and it was ruled out. One of the challenges for people with arthrofibrosis is that its symptoms mimic other conditions. The heat, swelling, severe pain, loss o...

Hello Pam

Wishing you a smooth, uneventful recovery.

Jaci

Hello Sandi, Your doctor is absolutely wrong when he says that ..... he doesn't think it is a scar tissue issue....since I really only have problems with extension. My initial surgery involved taking the knee cap off and putting a graft on it - so there was no surgical intervention to the back of th...

Karen: When your knee responds to exercise by becoming hot and swollen, you did too much. Now that your knee is flared up you have to go back to basics: patellar mobes, quad sets, lying wall slides, and so on. You still need to move your knee, but do it passively with your affected leg as relaxed as...

Simon, Altered joint mechanics can cause cartilage degeneration. The mechanics affect the forces between the joint surfaces and can damage to cartilage by causing the joint surfaces to fit differently and rub togther in ways that they were not meant to. I went from "pristine cartilage" to ...